Monday, June 6th, 2011

Actually Awesome Things to Say to a Cancer Patient

Now that we've covered what not to say, let's talk about some winning things to say to somebody with cancer.

These are my preferences after more than 20 years as a cancer patient, then a cancer survivor, and then a cancer patient again. Clearly different things are going to bug different people. You will do the best you can because you're a nice person, and your friend with cancer will be able to tell that you are doing the best you can. Don't over-think this.

1. I don't know what to say.
If you're feeling uncomfortable talking to us, we can probably tell. The best way to dispel awkwardness is to admit that you feel awkward. It's not our job to put you at ease, but maybe you'll feel better if you confess.

2. This is the worst news ever!
Of course you're upset to hear about your friend's diagnosis. It is totally fine to have strong feelings and to show them. But really, your friend should not have to reassure you or take on the burden of your feelings. I've kicked my family out to go cry in the waiting room during bad-news doctor visits. This is, first and foremost, my tragedy, and I can't be strong if the people around me are falling apart.

3. Is this a good time for you to talk about it?
We're all smiles in cancer land. We get complimented all the time for our positive attitudes. But sometimes our optimistic public face is in danger of cracking. We want to know that you care about us, but you can help by not pushing too hard for The Real Backstory in, say, the grocery store check-out line. Tell us you want to know more, and let us decide when we're up for that conversation. And sorry, you have to accept it if we don't want to talk about it at all.

4. Here are some ways I'd like to help you.
I like it best when offers of help are very specific. "I have a whole bag of fun wigs at home. Do you want to borrow them for a while?" or "I'm taking my kids out for ice cream later. Can I bring your kids along?" Then I can say yes or no without having to think of something helpful for the person to do. Also, when I get a vague offer of help and then I make a specific request, it makes both of us feel bad if the person doesn't want to do what I've asked.

5. Do you need someone to coordinate volunteers?
The first time my cancer came back after a 20-year hiatus, I was a busy working mother and was totally blindsided by the whole thing. My friend Anne offered to coordinate parents at my son's school to make meals for our family. The coordination was a bigger gift than the food itself. If you're good at this, you might want to offer to coordinate the help that comes in. Offering to help with information control is also good. My partner does this for me. He's willing to take phone calls or answer email from concerned friends when I'm feeling like a hermit. If you can offer this, it might take a huge burden off of the patient.

6. May I pray for you?
Many people find it comforting to know you're praying for them. To me it feels like you're proselytizing. But the rare person who asks me instead of TELLING me they're praying for me always gets a big fat yes. As long as you're not shoving your religious views down my throat, I am happy for you to pray if it comforts you to do so. Unless you know your friend shares your religious views, ask how they'd feel about having you pray for them.

7. You look great.
We like to hear this as much as the next person, but please, only say it if it's true. We might be bald. We might be scarred. We might have puffy faces from steroids or bruises from having blood drawn. So if we look like shit and you lie about it, we can tell. But I do like to hear it when I look sort of okay.

8. No strings attached.
I love to get letters, care packages, and email. It helps to feel loved, and I especially appreciate the people who let me off the hook. The emails that say, I wanted you to know I'm thinking of you but you don't have to write back. The phone calls that say, call me back only if you want to. The gifts that say, no thank you note is needed. I know I sound like a jerk. Someone sends me a gift and I can't even be bothered to write a thank you note? Returning phone calls is a burden now? But when I have very limited energy, I want to save it for my family and my garden and my writing. Cancer patients still have an obligation to be nice people, but maybe they don't have to follow all the social conventions perfectly right now.

9. Take cues.
Listen to me carefully. I might have just told you some really scary news about my health, but what else am I telling you? Am I being blunt and painfully realistic? Am I being cheerful, downplaying the seriousness of the news? Am I avoiding giving you details? Your job is to follow my lead. You can ask questions, but if I give you vague answers you need to drop it. It means I've told you as much as I want to tell you right now. If I'm optimistic, be optimistic with me. If I'm in the mood for gallows humor, don't try to force me to look on the bright side.

10. Say nothing.
That's right. I love it when people say nothing at all about my cancer. I'm tired of talking about it. I'd be curious to hear how other cancer patients feel about this, but I find it refreshing to be treated normally. That doesn't mean you should ignore my illness, but it can be a nice change to have an interaction with a friend where it just doesn't come up.

Above all, just do the best you can, and if you aren't sure you're giving the right kind of support, ask your friend how you can do better. Cancer patients may be walking an emotional tightrope a lot of the time, but we can recognize and appreciate good intentions, even if the things you say aren't pitch perfect every time.

Virginia C. McGuire is a Philadelphia-based freelance writer.

Photo by Nic McPhee.

14 Comments / Post A Comment

This list is super awesome and should be referred to any time you have a friend going through a difficult time!

ShanghaiLil (#260)

Having been through a bunch of near-brushes with death myself, I always tell people, "It doesn't so much matter WHAT you say (as long as it's not something completely boneheaded), but it does matter that you say SOMETHING. I found that too many people just avoided me because my illness made them so uncomfortable, and while I am still on speaking terms with some of those people, I wouldn't necessarily recommend that they count on me if something terrible happens.

Pandemic Endemic (#3,825)

@ShanghaiLil I gots the cancer when I was a young-un and the only thing I hated more than the medical bills was friends and family avoiding me, like they were scared that the cancer was contagious.

It's like the scariest thing that could have happened was maybe me asking them to get me some weed from their teenage neighbors.

Flaneur (#998)

Nice follow-up. Helpful, cogent advice that everyone should follow. Best of luck to you.

11. "Are you going to eat that?"

GailPink (#9,712)

Get Well.

Bittersweet (#765)

#2 is why my sister and I rarely tell my mom anything bad about our lives, from medical problems to annoying bosses. We end up taking care of her feelings as well as dealing with our own crap. No thanks.

All the best, Virginia.

SeanP (#4,058)

@Bittersweet I have this problem with my wife, at least with respect to medical issues. I don't dare discuss any potential symptoms, because I'll promptly be diagnosed with cancer or worse (most recently: rabies! True story!).

hockeymom (#143)

Thank you for this list.
Can I add two specific things? (they were helpful in my family, maybe not for everyone):
Offer to do laundry (or if you're related, just do it).
Offer to clean the house once a week (or once a month).

All the best to you.

SeanP (#4,058)

Excellent advice, and get well soon.

Roberta15 (#13,876)

I just finished 2 rounds of chemo for early BC. Your advice is great (plus the laundry, cleaning suggestion above) with 2 additions:: I only want to hear positive survivor stories…like "my aunt had the same thing 30 years ago and she's still playing tennis! with no recurrence" AND I DON'T want to hear other bad cancer stories. One moron told me "Oh, I just heard about a 6 yr old with eye cancer". Not only was that deeply upsetting to anyone, but to tell that to a Ca patient, and one going thru chemo- like – get a brain! I want to murder her! Stupid!

GoGoGojira (#2,871)

@Roberta15 My problem is that I don't have any personal positive survivor stories, but I don't know I could convey that I have experience with cancer other than getting into the "my mom was diagnosed with stage 4 breast cancer when she was 35 and died three years later—BUT THAT WAS BACK DURING THE '90s SO DON'T WORRY" freak show. But my lack of positive survivor stories is due largely to my lack of cancer stories in non-elderly-people in general.

maggymae (#14,347)

Thank you for this article. To answer your request for comments about number 10. I agree. I avoided telling many people for a while because of the reactions from those I told early. It feels nice to be treated normally. So many people want an update lately. I feel like I need to start a blog. It is exhausting to try to keep up.

Adrienne (#247,236)

LOVE #5 I work for a non-profit called, we provide free websites to people affected by cancer where you can update everyone at once, and it has a calendaring feature for coordinating volunteers. Thanks for the great article. I talk to a lot of people who use our site, so it's good to know what is comforting for people to hear.

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